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Puberty & Autistic Behaviors: Changes in the Experience and Expression of Autism Across the Lifespan

Updated: Jun 6, 2020



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In this post, you will read about changes in the experience and expression of autistic behaviors that may occur during puberty. In order to support each ASD individual, it is critical that autism characteristics are recognized to be "persistent" (as noted in the DSM-5 criteria) but also somewhat changeable in expression across life seasons. (also see Let's Bust the Myth that Autism Looks the Same Across the Lifespan


PUBERTY AND AUTISTIC BEHAVIORS


Autistic behaviors are an expression of how the brain has connected and developed. The brain is part of the body and can change as the body changes. Hormone changes are one aspect of physical function that may impact behaviors in autism. 

PUBERTY AND EMOTIONAL/BEHAVIORAL REGULATION

In addition to physical changes in height, muscle mass, etc., teens also experience notable changes in emotional and behavioral regulation. This term refers to the ability to stay calm and centered (to regroup when upset, to calm down when angry, to refrain from hitting or punching people/property). Many an adolescent can switch from laughing to crying to shouting within minutes (and often not understand why). 

AUTISM AND REGULATION

Individuals on the autism spectrum are prone to emotional and behavioral dysregulation (even at an early age). According to research by Samon (2013), "children and adolescents with ASD showed more emotion dysregulation and had significantly greater symptom severity on all scales [of a behavior profile than neurotypicals]. Within ASD participants, emotion dysregulation was related to all core features of [autism]."

AUTISM, PUBERTY, AND REGULATION

It should come as no surprise, then, that the changes in emotions and behaviors are apt to appear even more dramatic within (than outside) the spectrum during puberty. 

As noted by the Lurie Center for Autism at MassGeneral for Children, "New behaviors can surface—such as emotional outbursts, aggression, property destruction, self-injury, and increased anxiety. Even the most stable family can feel challenged."

CLINICAL OBSERVATIONS

In my clinical practice, patients and families do seem to report frequent struggles around the age of 14 years and through the early 20s. The difficulties may take the form of agitation, anxiety, increased sensory reactivity, reduced sleep, repetitive behaviors, or sometimes restless fixations on interests that appear somewhat "manic." 

In-depth research about this topic continues to be lacking. Studies are needed to capture the frequency of behavioral escalation in ASD during puberty. Because I see individuals in a clinical setting (those who are presenting because of difficulty), my observations of struggle may represent a minority subset of ASD adolescents.


Have you explored the website? Check out the many pages dedicated toward clinicians, autistic adults, and family members. You can read articles, find the podcast, or book sessions with Dr. Regan directly through the website. Have additional questions? Feel free to email Dr. Regan and her team using the contact form. 

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  • Can Dr. Regan recommend a local provider for autism diagnosis?
    Currently, Dr. Regan does not have a nationwide list of referral options for autism diagnosis. We recommend contacting local autism support organizations or your primary care physician for recommendations.
  • How can professional clinicians schedule an appointment with Dr. Regan?
    Professional clinicians can schedule appointments with Dr. Regan by visiting the "For Clinicians" page on her website. There, you will find information on professional consultation appointments, CEU courses, and a free clinicians' group.
  • Does Dr. Regan accept insurance for appointments?
    Yes, appointments with Dr. Regan at OSF Saint Francis Medical Center are billed through the hospital, and any insurance accepted by the hospital can be used. Please verify coverage with your insurance provider before the appointment. Video appointments via Dr. Regan's website are self-pay. For more details, visit the video visits page.
  • Can Dr. Regan perform diagnostic assessments for autism?
    Yes, Dr. Regan specializes in autism assessments for adolescents, adults, and older adults, having completed over 1,000 evaluations, including around 400 for females. She performs diagnostic assessments exclusively at OSF Saint Francis Medical Center in Peoria, IL, with a current waitlist of about four years. While she does not offer diagnostic evaluations through her website, she provides one-hour video consultations on topics like communication, relationships, household living, emotional regulation, and work. These can be scheduled via the video visits page.
  • Is it possible to schedule a video visit with Dr. Regan from out of state?
    While Dr. Regan does not conduct diagnostic evaluations via video sessions, you can book a one-hour consultation to discuss daily living topics such as calming anxiety, effective communication, relationship repair, navigating neurodiverse households, and improving organization and productivity. Note that Dr. Regan cannot provide video consultations for individuals in Alaska, California, Guam, Iowa, Hawaii, Louisiana, Massachusetts, Montana, New Mexico, New York, Oregon, countries outside the USA, or Illinois due to contractual obligations with her employer.
  • How can I get on Dr. Regan's evaluation waitlist in Peoria?
    Dr. Regan conducts diagnostic assessments at OSF Saint Francis Medical Center in Peoria, IL. She sees patients aged 14 and older including adolescents, adults, and older adults. She has a four-year waitlist. To be placed on the waitlist, please have your physician call 309-655-7378 for instructions on how to send a referral. Once this is complete, a member of staff will contact you to hold your appointment date.

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